Edition2018

Cinema and Rare Diseases

At Casa del Cinema di Roma, on 10th and 11th February the third edition of “Uno Sguardo Raro” was held. It was the first edition as a proper Festival, with the director Cinzia TH Torrini as President of the Jury.

The first international film festival dedicated to rare diseases debuted with important numbers: almost 1000 films received, from over 50 countries including 158 from Iran, 140 from Italy, 97 from India, 52 from Turkey, 48 from Spain, 43 from the United States and then Russia, Poland, France along with other European countries, up to Singapore, Hong Kong, Malaysia and Pakistan among many.

Casa del Cinema di Roma, on 10th and 11th February 2018, hosted “Uno sguardo raro”, the festival dedicated to rare diseases described by various point of view with short films, Under 30 short films, documentaries, commercials and very short films made with smartphones and Tablet.

A festival ‘healthy bearer of emotions’, made up of stories that tell you how you can overcome your physical limits and many more. Among almost one thousand films, only 18 were selected for the final phase – including shorts and documentaries- by the Quality Jury leaded by Cinzia TH Torrini. In addition to Italian films, were selected works from Indonesia, Spain, United States, South America and North Africa.

During the awards ceremony, the spot #limitizero was screened. A commercial born from a project dedicated to children and young adults with hemophilia created by Osservatorio Malattie Rare in collaboration with the European Institute of Design in Milan, with the collaboration of Fondazione Paracelso, FedEmo and Aice. The aim was to build, together with the youngsters, a new image of the disease so little known by the new generations. It was made possible thanks to the unconditional contribution of Sobi Italia, a biopharmaceutical company dedicated to the development of innovative therapies for rare diseases. The company has also unconditionally supported the Festival.

Another title scheduled for the final evening is the short film “Tess is Not Alone”, directed by Bo Bigelow, father of Tess, protagonist of the story. She is suffered from the USP7 mutation, a rare disease that causes neurodevelopmental disorders, abnormalities of white substance, speech and autism spectrum disorders. Bo gave birth to the Festival Disorders in Boston – a film and short film festival about rare diseases, a highly successful event twinned with Uno Sguardo Raro.

The festival provided for a Popular Jury, which involved the public in judging the works in competition, selected by the Quality Jury, for the special prize of the public. Students from film school were protagonist, who participated with passion in the voting sessions.

During the second day, the director Annamaria Liguori, presented her short film “How can we help you?”, produced by Rotary International, together with Professor Mario Morbidi.

These are the prizes awarded:

WINNER BEST SHORT FIM 2018 (ex aequo)

“UNA BELLISSIMA BUGIA” by Lorenzo Santoni (ITALY)

A beautiful and original story, a perfect marriage between very good actors and a director, who managed to tell the difficult syndrome of Duchenne with originality and delicacy. “The art of living is the art of knowing how to believe in lies” the director quotes “The craft of living” by Cesare Pavese, and his ability to make us dream and believe in something different, takes us away from ourselves and it helps us to make sense of reality.

and

“RESTROOM 13” by Daniel Nieto (ISRAEL)

A story so strong as real. Bitter for the obstacles that still exist today in many cities for disabled people. The difficulty of simple action, which we take for granted, but which instead turns out to be a nightmare for a person in a wheelchair. A hard battle between the desire for independence of the protagonist, to carry out a natural physiological function and the architectural barriers that he encounters. But the obstinate search for independence unfortunately can also lead to a crisis of self-esteem. Very incisive.

WINNER BEST DOCUMENTARY 2018 (ex aequo)

“MY FEAR” by Manfred Lopez Grem (MEXICO)

Moving and engaging. A short but intense documentary and immediately becomes attached to his young protagonist. It gets the gist of Uno Sguardo Raro: “Life seen from the eyes of those who, every day, exceed their limits”.

and

“M.E.” by Alexandra Hohner (UNITED KINGDOM)

A short film that makes you want to enter the category of animation, given the great quality and effectiveness in making understand the feelings related to the disease. A beautiful and effective animated documentary, which stimulates the research and understanding of the symptoms of a very particular disease, which tends to isolate those affected.

WINNER BEST VERY SHORT FILM WITH SMARTPHONE 2018

“SHARE A SMILE SHARE THE LIFE” by Sofia Ricci (ITALY)

For the explosive energy with which these young boys have shared a unique experience together, despite the disease. For having grasped the sense of the category in competition “very short film with smartphone”, with great fun and rhythm.

WINNER BEST COMMERCIAL 2018

“BEYOND THE IMAGE – POLAND SYNDROME” by Francesco Martinuzzi (ITALY)

Excellent balance between a good audio visual product and a positive social value, due to the fact that the disease is seen as a strong point and not a weakness.

WINNER BEST SHORT FILM UNDER 30 2018

“ALL EYES ON ME” of Edoardo De Luca (ITALY)

For having get the gist despite the few tools available. A strong message tells the sense of exclusion, the need for sociability. Looking for other values. The eyes of a soul so strong as to push us to look beyond its “spot” and see its qualities and potential, and not just its diversity.

Per aver centrato l’obiettivo nonostante i pochi mezzi a disposizione. Un messaggio forte, d’impatto, il senso d’esclusione, il bisogno di socialità. Cercando altri valori. Gli occhi di un’anima così forte da spingerci a guardare oltre la sua “macchia” e vedere le sue qualità e potenzialità, e non solo la sua diversità.

WINNER SPECIAL MENTION OF QUALITY JURY 2018

“HUMAN” by Issam Taachit (ALGERIA)

The dreams of a “different” child come true. A message as simple as positive, we become small and strong spectators too watching it. A poetic story of redemption, a combination of images and music with the use of very few but important words. A child who manages to be accepted despite everything, becoming a great little hero.

SPECIAL AWARD SOCIAL COMMITMENT 2018

Lucia Marotta President of Animass onlus

A recognition because she decided to tell the story of a person living with a rare disease, with determination and passion, through cinematographic language. A commitment carried out with 2 very intense and high-quality works, to sensitize decision makers, the medical and pharmaceutical world about the rare disease and her pathology.

SPECIAL COMMUNICATION AWARD FERPI 2018

Famiglie Sma onlus

For having had the courage to break the communication patterns in terms of sensitization and to make their associates positive and captivating.

WINNER SPECIAL MENTION OF POPULAR JURY 2018

“COEXISTENCE” by Juan Carlos Guerra (SPAIN)

With great technical accurancy and inspired direction, “Coexistence” by Juan Carlos Guerra sensitizes the viewer allowing him to dive into a threefold perspective: community, scientific and of those suffering from cerebral palsy. It deeply strikes the bond established between the boys through a formative and empathetic dialogue, that breaks down the barriers of prejudice.

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