A DIFFERENT WAY OF LOOKING AT THINGS
“N ow, more than ever before, we live in a very complex and fast-paced society. It is not easy, in these constantly changing conditions, to maintain our attention on those invisible stories, stories for which we often have the tendency to look the other way. But this kind of society demands a new vision, based and grounded on new social values, both more inclusive and human, values that we can spread through culture. Uno Sguardo Raro has opted to promote a different way of looking at things! A change of perspective of our day-to-day life through an incredible tool – cinema: the “rare glance” that audiovisual artworks give to the public, allowing them to see the world from the perspective of those who have very little, but are able to enjoy it to the full because the little things they have are precious.
Claudia Crisafio Chairman and Artistic Director
Uno Sguardo Raro is a cultural project that intends to describe diversity and show what it means to live with a rare disease or disability both for those who suffer from it and for those who take care of it. The project was born after the meeting between Claudia Crisafio, actress and author, and Serena Bartezzati, ill with a rare disease and communication professional. Together, they established the very first and only film festival dedicated to rare diseases on a European level, which collects and promotes the best video works about rare diseases, disability and social inclusion.
A rare – or orphan – disease is a disease that affects 1 person for every 2000 people.
There are over 6,000 rare diseases worldwide.
Some diseases, such as the Xeroderma Pigmentosa, affect few people in the world, some are more widespread and known as Haemophilia. Actually the diseases are rare, but unfortunately there are many people suffering from them. The estimated figure is 30 million affected people across Europe.
We believe that cinema and audiovisuals can be the most effective tools for raising public awareness of rare diseases and disability in order to build an increasingly aware and sensitive community..
We would like to make the world a more inclusive place, through the research, promotion and production of the very best short films, documentaries, awareness raising videos, feature films which tell in any genre and from any point of view the daily struggle of every human being to exceed his own limits, to go further and to never give up.
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Uno sguardo raro
1st FESTIVAL
The first edition of Uno Sguardo Raro took place during Rare Disease Day 2016 and was organized in a few days thanks to the collaboration and support of UNIAMO FIMR onlus, the Italian Federation for Rare Diseases. The review was patronaged by Anac National Association of movie authors (Associazione nazionale autori cinematografici) e 100autori – an association dedicated to cinematographic and television authors, and was held at the Sala Kodak in Casa del Cinema di Roma achieving great success with the public and industry professionals. This positive feedback drove Claudia Crisafio and Serena Bartezzati, along with other members of the artistic and cultural community and the world of rare diseases..
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Uno sguardo raro
2nd FESTIVAL
The 2017 edition was held on February 25, again on the occasion of the RDD at the Casa del Cinema di Roma’s Deluxe Hall. In addition to the revived collaboration with UNIAMO FIMR onlus and the sponsorships of Anac and 100Autori, “Una sguardo raro” was supported by BIOGEN, a leading company in the biotechnology industry and, in the role of media partner, O.Ma.R, Osservatorio Malattie Rare. This has established a partnership with Concorso “Il Volo di Pegaso”, organized by Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità, and the Perugia Social Photo Fest that, once every two years, organizes…
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Uno sguardo raro
3rd FESTIVAL
In 2018, the event turned into an International Festival with the publication of a Call for Proposals for Commercials, Short Films, Docu-films and Short Films for young authors, confident that this was the right way to draw attention to the community of rare diseases. More than 900 authors and directors from 140 countries all over the world responded to this first Call for Proposals, and the participation of the public and the Patients’ Associations at the two shows has also confirmed the success of the idea. In this edition, the commercial #limitizero, a project dedicated to children and young adults suffering hemophilia created by the Osservatorio Malattie Rare made its debut…
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Uno sguardo raro
4th FESTIVAL
The 2019 edition has witnessed a great development of the Festival. The launch took place within Festa del cinema di Roma, where the first press conference of Uno sguardo raro, in association with Roma Lazio Film Commission, was held. The list of partners has widened remarkably, including, besides “Il Volo di Pegaso”, the historic competition of Centro Nazionale Malattie Rare del Istituto Superiore di Sanità, O.Ma.R, Osservatorio Malattie Rare, FERPI – Federazione Relazioni Pubbliche Italiane, the collaboration with “Disorders” – The Rare Disease Film Festival, which takes place in the United States, has been consolidated…
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Uno sguardo raro
5th FESTIVAL
It is the first and only film festival focusing on rare diseases at European level, and it collects and promotes the best video productions focusing on the theme of rare diseases and social inclusion through an international competition.
The 5th edition has a very rich program; click on the button below to learn about the program of the 5th edition.
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