PRESS RELEASE OCTOBER THE 19th, 2019
Uno sguardo raro
ACTION, WE’RE ROLLING! A WHOLE NEW VIEW
PRESENTED AT FESTA DEL CINEMA DI ROMA
“UNO SGUARDO RARO” – THE RARE DISEASE INTERNATIONAL FILM FESTIVAL
Today, Saturday, October the 19th 2019, from 3.30 p.m. to 4.45 p.m., in Rome, the launch of “Uno sguardo raro” – Spazio Roma Lazio Film Commission, AuditoriumArte Auditorium Parco della Musica
Rome, October the 19th 2019 – The Festival was created to explain what it means to live with a rare disease or disability, both for the patient and the caregiver. The aim is to offer a different narration of these themes and to give a new image of this life through cinema, one of the most vital languages with a high emotional impact, able to shake consciences and to help break down biases. The “rare look” (lo sguardo raro) is in fact the one that the competing artworks provide to the audience, who will be able to see the world from the perspective of those who do not have much, but will be able to enjoy it to the full, because what little they have is precious.
In 2020 the Festival celebrates its 5th edition and it will be heldin 2020 in Rome, in March, from the 9th to the 15th. Today, as well as relaunching the Call for Proposals for “Uno Sguardo Raro” – scheduled to expire on November the 30th, 2019 – we will the many innovations of this edition and screen some commercials and shorts that have shaped the relationship of the community of rare patients with the audiovisual media.
This edition’s novelties
One of the most important achievements is the PCTO-Percorso per le Competenze e l’Orientamento Trasversale convention, conceived with Istituto Cine-Tv Roberto Rossellini, which offers the chance to actively involve future video professionals on the theme of “different”, promoting the idea of an increasingly inclusive society.
Another important achievement is the partnership with Agenzia di Stampa DIRE, that, through its editing office devoted to schools, will support the Festival in the world of middle and high school students, with events dedicated to the vision of feature films on “Uno Sguardo Raro” themes.
Due to its partnership with Facoltà di Scienze della Comunicazione sociale dell’Università Pontificia Salesiana, “Uno Sguardo Raro” will concretely get in touch with university students for the realization of a Round Table linked to the USR-FERPI award on social communication in the medical field.
The 5th edition also opens to the world of screenwriting, with the Competition for Screenwriters on the theme of rare diseases, open to everybody. The winners will attend an intensive screenwriting workshop. Following the outcomes of the workshop, a short film will be produced for the 2021 edition of the Festival.
In association with the acting school Fabbrica Artistica, directed by Rolando Ravello and Massimiliano Franciosa, the Festival will offer 2 scholarships to people suffering from a rare disease: one for the acting class and one for the school’s creative writing class. Federazione Italiana Malattie Rare, UNIAMO FIMR onlus, will assist the Festival on the selection and the didactic path of the students.
The Call for Proposals to attend the 5th edition of “Uno Sguardo Raro” – the Rare Disease International Film Festival 2020, with free registration and open to everybody, is online at show.kirweb.it/2 and can be downloaded here: https://www.unosguardoraro.org/2020-edition/.
There are six categories in competition
There are six categories in competition: ITALIAN SHORT FILMS; INTERNATIONAL SHORT FILMS; ANIMATION SHORT FILMS; DOCUMENTARIES; Awareness-raising SHORT/SPOT in collaboration with FERPI; INSTITUTIONAL HEALTHCARE COMMUNICATION SHORT FILM/SPOT in collaboration with PA SOCIAL. This call is due to expire on November the 30th, 2019. So far, more than 500 artworks, from 74 countries have arrived on the Festival’s platform, testifying how widespread the community of rare diseases patients and people fighting with disabilities and degenerative diseases is, and how much they want to be heard. “Uno Sguardo Raro” offers a stage to these people, intended to help building a society where everyone has an equal opportunity to realize their own potential. The competition is open to videos focusing on the theme of rare diseases and disability, but also to works that deal with empathy, resilience, courage, celebrating the strength that people with limitations of any kind put in place to live their lives to the full. The artworks will be judged and awarded by a Quality Jury chaired by Gianmarco Tognazzi and composed by cinema, communication, scientific world and rare disease community professionals. Alongside the Awards, there will be a Special People’s Jury Mention decreed by the public votes, and the Heyoka Prize, awarded by the online community born to share stories of courage and experiences of understanding in the field of disability, with the aim of breaking down the physical and mental barriers of our society.
Attendees, in order of participation
Claudia Crisafio Uno Sguardo Raro
Serena Bartezzati Uno Sguardo Raro
Kemal Comert Filmaker, vincitore 2019
Serena Bianchini FERPI
Simonetta Blasi Facoltà di Scienza della Comunicazione sociale – Università Pontificia Salesiana
Lorella Salce PA Social
Pamela Pompei Filmaker vincitrice 2019
Luca Arduini Istituto Cine-Tv R. Rossellini
Serena Paglino Istituto Cine-Tv R. Rossellini
Maria Teresa Marano Dirigente Istituto Cine-Tv R. Rossellini
Massimiliano Franciosa Fabbrica Artistica
Margherita Gregori UNIAMO FIMR Onlus
Marta Nicoletti Agenzia DIRE
Angela Ruocco Health Humanities CNMR Istituto Superiore di Sanità
Lorenzo Santoni Hexagon Film Festival
Traditional partners and sponsors of the Festival: Istituto Superiore di Sanità con il Centro Nazionale Malattie Rare, O.Ma.R – Osservatorio Malattie Rare; Telethon; SOBI – industria biofarmaceutica multinazionale dedicata alle malattie rare; Agenzia DIRE; Fabbrica Artistica; Facoltà di Scienze della Comunicazione sociale dell’Università Pontificia Salesiana; FERPI-Federazione Relazioni Pubbliche Italiana; Heyoka Empath; Istituto Cine-tv R. Rossellini; Associazione PA Social; UNIAMO-Federazione Italiana Malattie Rare Onlus.
We call it RARE a disease that affects less than 5 out of 10,000 people. Very rare diseases affect less than one person in a million. However, diseases may be rare, but patients are not. In fact, according to the Orphanet network, there are over one and a half million patients in Italy and EURORDIS, the network of European MR alliances, estimates that there are 30 million patients in Europe.
The organizational body of the Festival is the association “Nove Produzioni”, a de facto, non-party and non-political, non-profit association, founded in 2017 with the support of members from the world of cinema and the community of rare diseases patients. The social purposes are the diffusion of culture as a tool for social integration and for raising awareness on issues of public interest, especially in the context of rare diseases, and, above all, to promote actions for the society through innovative visual communication, based on ethical and inclusion principles.